Since I hadn’t had chemotherapy for several weeks (except for the maintenance drug Avastin) I was feeling pretty good and decided if I was going to do anything daring, this gap in time was the right time to go for it. So with much trepidation, I decided to take another road trip (just me and my dog Izzy) in my small motorhome and see some things I’ve never had the opportunity to see, but have always wanted to see. My fears stemmed mostly from an increased amount of pain in my bladder and the possibility that my bladder could implode again so far away from home. Well, to quash any suspense in that regard, I made the trip and I didn’t have any physical problems.
I drove across Wyoming on day 1, spending a snowy, freezing night in Cheyenne. By then I was beating myself up for going on this trip since I don’t like the snow, especially driving in it. The plan for day 2 was to drive across Nebraska. When I awoke early that morning and took the dog out to do her duty, it was freezing cold, snowing a little and the motorhome was essentially frozen with snow and a thin layer of ice covering the non-snowed over areas. Again, I was upset with myself but was determined to get out of Wyoming. It was white-knuckle driving for about an hour before the roads then cleared, along with the skies and the rest of the trip was uneventful weather-wise. I stayed in Omaha, Nebraska and spent the next day exploring what we in the Church of Jesus Christ of Latter-day Saints call “Winter Quarters.” This is where early church pioneers spent the winter when they were crossing the plains too late in the season to make it to Salt Lake City. I have an infant (distant) cousin buried in the cemetery there, next to the visitor’s center which I enjoyed exploring. The next day I drove to DeSmet, South Dakota where Laura Ingalls Wilder’s family lived for many years. Two of her “Little House” books took place in this town. I took tours of the schoolhouse, the surveyor’s house (which they lived in one winter) and “Pa”s house in town. I loved being in these actual places, and since coming home have read four of her books and a couple of biographies about her. How I wished I’d read them just BEFORE going on the trip! Anyway, I finished up my week-long adventure seeing the Badlands and Mount Rushmore on the other end of South Dakota. Then the last day I experienced Devil’s Tower, Wyoming (see above picture) close up. I loved all of it except for the snow and was glad I took the opportunity to see these amazing sites!
When I got back from my trip I made an appointment to meet with the people doing the drug study and to sign the consent forms. It turns out I did not have to do a biopsy after all; they could just test the tissue that had been saved from my original debulking surgery. That tissue would be studied to determine if I had high levels of a specific protein that the trial drug targets. I asked the girl what percentage of people tested were able to join the study. She said “So far, 100%.” Now I don’t know how many people that actually includes–I should have asked this question but I did not. Knowing that things had not exactly gone “normally” for me up to this point, I said, “Well, the way things have gone for me so far, it wouldn’t surprise me to be the one exception.” She told me they would be getting back to me once they find out the results. This morning I received the call telling me that I did NOT qualify to participate in the study. My premonition was right on. This tells me that yes, my tumors have not been the standard ovarian cancer tumors. My question is why don’t they test that right off the bat, and have treatments appropriate for what you have got? Maybe they just are not that sophisticated when it comes to ovarian cancer yet. It’s not a high priority cancer like breast cancer.
It just so happens that today I ran into a friend down the street and we talked for a while. She walked me back home and then left, and within two minutes was back with a son of hers who just came by. He told me about an alternative treatment and told me to go to a certain web site to read about it. This of course was not the first time someone has told me about an alternative cancer treatment. And I have read all that have been suggested. None sounded very promising, and/or they were expensive or just not anything I wanted to try. I also feel like most were “desperate” measures, and I just don’t feel desperate about my impending death. So anyway, I went and read about this one. It just seemed like there was a higher probability of success with little to invest and no side effects. So what have I got to lose? I have an appointment with my oncologist in a couple of weeks and I will see what options he’s got left for me, but I thought I would try this one. I’m keeping it secret for now, but will let you know at a later date how it works out for me.